Diet advice

Laura from Boston

Active Member
Hello,

I'm in a wheelchair due to multiple sclerosis and have gained a large amount of weight over the years. I'm trying to avoid a gastric bypass and I'm interested in hearing about people's experiences with diets; especially people with a lot of health issues like myself. Any advice would be greatly appreciated. Thanks
 

athenasius

Well-Known Member
Speaking just for me Laura, I do it to mainly for reducing inflammation and to keep from regaining weight I lost previously. And I explain in the other thread, if a Dr weighed me, they'd all say I need to lose a lot more. However I hit a point where I don't regain easily, I can maintain easily and my body feels pretty good. Equilibrium. If I was really paying attention, I should lose a bit more, but I lost about 18% of my starting weight and just losing 10% will usually net you a LOT of the benefits.

The reason I did so was because I was very sick with an autoimmune problem that remains unnamed, although my blood markers for inflammation that go up for things like Lupus, are up. They've come down to high normal on the low carb diet. AND more importantly I've reduced my auto immune system attacks to rarely from frequently. I also pay attention to reducing stress but that is a bit more out of my control as it is for anyone whose dr says, "Oh by the way, you should avoid stress, it's a trigger for inflammation."

Avoid stress -- just HOW DOES one do that in any normal family? :lol :drama2:laugh:pound:water Yeah right!

The weight loss was super welcome, but my biggest reason for low carbing, was to reduce inflammation and reduce the number and severity of the attacks.

(Whatever it is, I end up with recurring bouts of thyroiditis-- I've had half my thyroid removed, & am on Synthroid to keep the other half from going nuts. I also have recurring bouts of asthma, eczema, allergies, as well as chronic bowel inflammation, diverticulosis and diverticulitis. There's some new one my dentist diagnosed, that happens to the mouth with people with auto immune nonsense, and then I walk funny with balance issues and muscle weakness. Plus fatigue that sometimes lands me on the couch for the day. They've tested for MS, it's not that nor is it Lupus (that got ruled out because I don't have enough joint problems-- and I eliminated those by eliminating legumes from my diet).

I find keeping that weight off, and putzing around as I am works for me.

Although right now I've had a year of stress, and put on about 10 lbs, which are slowly coming off now. (I lost my dad, George's dad, a beloved uncle, and my beloved missionary auntie and my sister is having ongoing serious mental health issues. On top of all that G was diagnosed with a brain tumour last fall, and thanks be to God, he was put on a drug that has successfully shrunk the tumour so he regained his eyesight, and has avoided surgery)

So when anyone talks about stress interfering with weight loss, and contributing to weight gain, I can SURE hear and understand and sympathize. You've been thru far more than me. Health wise and stress wise.

So all this to say, anytime you need a virtual hug or a virtual kleenex, or some prayer, I'm all yours!

For helpful reading, I got Gary Taubes book Why We Get Fat And What To Do About It shortly after he published it in 2010.

To this day I think that God gave me that book as an answer to prayer. I had used low carb diets in the past to lose (I've never been super duper keen on following anything, but cutting the carbs just works for me) but I was getting worse auto immune problems.

Gary's book explains why low carb diets reduce inflammation, which was what I needed to know.

At the same time I read Grain Brain, by Dr David Perlmutter and Wheat Belly by Dr William Davis. They sent me off on a different track, exploring the problems with gluten that I might have.

I cut out all wheat and gluten and from then on, tried to ensure that if I did eat a carb, it was a gluten free carb. I've tested myself by eating gluten since, and every time I do, there is some neurological problem-- the dizzyness and the muscle weakness come back. They go away altogether as soon as I go gluten free again. I do get a little of that when I'm overtired, but not like when I eat gluten. And I itch. I've been tested for celiac, and I'm not so I'm probably one of those non celiac gluten intolerant people.

As I went along, I got some Vit D levels done and found that for me and for George, they were almost non existent in spite of taking Vit D supplements all our married life. 41 years. With the help of our Dr, I've played around with the Vit D that G and I need to stay in the LOW NORMAL blood test for Vit D range, and that is a whopping 2,000 IU per day. 400 IU used to be the upper limit, but there's been recent research into VITAMIN D and auto immune stuff (and our Dr also says he sees these low blood levels in people who have cancer-- George's brain tumour is non cancerous, but it's there.) The research is showing some type of connection between low Vit D levels and autoimmune diseases. Whether one causes the other is not known.

However as I brought our Vit D levels up to low normal which meant we took 4,000 a day for a while, down to 2000 right now, and both of us felt better and had a little more energy. And I've weathered the stress storms of this past year a lot better than I would have 2 or 3 years ago.

I'm hoping this is helpful so you understand where I'm coming from, and what I've been thru with this journey, and I don't mean in ANY way shape or form to be saying that you or anyone else should do what I did. It worked for me.

But God made us ALL different. So I include the saga in case it's helpful as my past history, not for any reason to suggest anyone else should do likewise.

We each have to do our own research, and prayerfully ask God's direction for our individual needs.

Big hugs.
 

athenasius

Well-Known Member
Today I happened to be watching a presentation on YouTube by a Professor Tim Noakes, who is a specialist in the research around low carb and why it works, from his background in Exercise and Sports Medicine, and he mentioned someone else a paediatric gastroenterologist who is head of the dept in Mass. Gen. -- Dr Allessio Fasano. I looked him up. His credentials are:
  • W. Allan Walker Chair in Pediatric Gastroenterology and Nutrition
  • Division Chief, Pediatric Gastroenterology and Nutrition; Director, Center for Celiac Research and Treatment
  • Director, Mucosal Immunology and Biology Research Center; Associate Chief for Basic, Clinical and Translational Research
and he is one of the world leaders in research on gluten ataxia which is a problem I have. It's usually traceable to me having a bit of gluten. Then I have trouble with my muscles and balance. Sometimes I fall.

OK so why I popped all this in here, is because Dr Fasano's research is showing a few really interesting things.

First is a connection with NON CELIAC GLUTEN INTOLERANCE and Leaky Gut Syndrome along with Auto Immune diseases of ALL kinds and apparently he isolated the link to a certain part of the gluten molecule, which apparently "unlocks" the cells lining the gut, to allow various proteins, and allergens into the blood setting up chronic auto immune diseases.

So he hasn't just affirmed the Leaky Gut theory, he has found a trigger. And it's gluten. Those of us who go low carb generally cut all gluten out because gluten is mostly in grains, barley, wheat and some others so people on low carb diets generally avoid grains, as do those on Paleo or Carnivore diets.

Dr Tim Noakes was praising Dr Fasano, and Dr William Davis(the Wheat Belly dr) and Dr Perlmutter (the Grain Brain dr)

and he was pointing out that the incidence of leaky gut, and non celiac gluten intolerance started to spike in the late 70's early 80s when the new food pyramid came out and all the dieticians and drs were recommending 6-8 servings of whole grains per day!

I sat up and paid full attention because something ELSE I know from elsewhere is that that is about the time frame people began eating more GMO grains, the genetically altered strains. RoundupReady grain came along a little later, but that too paralleled a spike in gluten sensitivities.

And then Tim Noakes went on with a fairly technical explanation of the whole carb to insulin to fat storage, to impaired glucose tolerance to increased triglycerides and said that the cholesterol that is causing trouble in people's arteries is coming from CARBS. Too many carbs and the body creates triglycerides and cholesterol and the sugar levels in the blood create micro tears in the blood vessels which the body patches with whatever cholesterol is available. And he was reaffirming the connection between high carb low fat diets and inflammation of all kinds from arterial disease to auto immune stuff like fatigue, MS, Lupus etc.

It might be a clue for those of us struggling with auto immune diseases and especially the link with Non Celiac Gluten Intolerance or Sensitivity. Just one more puzzle piece slotting into place.
 

Luke12

Well-Known Member
Just one comment here about the Vitamin D mentioned in this thread. I had my blood tested for Vitamin D and it was super low even after taking large amounts of the stuff. Then my doctor told me to take Vitamin K2 along with that to help the uptake of D.
Well my next test of Vit D shot up so high my doctor was alarmed so he sent me a letter and told me to back off of the stuff because he thought it was at a toxic level. D3 and K2 apparently go hand in hand.

Edit: My apologies to everyone in this thread I didn't realize I was posting in the ladies section.
It's early in the morning plus I blame it on age …………:biggrin2
 
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athenasius

Well-Known Member
Just one comment here about the Vitamin D mentioned in this thread. I had my blood tested for Vitamin D and it was super low even after taking large amounts of the stuff. Then my doctor told me to take Vitamin K2 along with that to help the uptake of D.
Well my next test of Vit D shot up so high my doctor was alarmed so he sent me a letter and told me to back off of the stuff because he thought it was at a toxic level. D3 and K2 apparently go hand in hand.

Edit: My apologies to everyone in this thread I didn't realize I was posting in the ladies section.
It's early in the morning plus I blame it on age …………:biggrin2
Luke, thanks and you are most welcome in here, I think we accidentally got this thread going in the ladies area but it's a subject that we ALL need each other's wisdom and input on.

I'm going to check out that K2 connection immediately because both G and I struggle with low levels, as do our children and grandchildren in spite of living in a sunny area, and the kids and grands are out in the sun a lot. There seems to be something wrong with our ability to absorb it.

I don't get enough sun anyways, never did, I am a redhead, I burn, and I've had a melanoma, and I am scrupulous about using mineral sunscreen or covering up (allergic to chemical sunscreen). So my problems with Vit D are "normal". But G and the kids all have brown skin that tans easy and they are out in the sun a lot. They shouldn't have trouble but they do.
 

Luke12

Well-Known Member
Luke, thanks and you are most welcome in here, I think we accidentally got this thread going in the ladies area but it's a subject that we ALL need each other's wisdom and input on.

I'm going to check out that K2 connection immediately because both G and I struggle with low levels, as do our children and grandchildren in spite of living in a sunny area, and the kids and grands are out in the sun a lot. There seems to be something wrong with our ability to absorb it.

I don't get enough sun anyways, never did, I am a redhead, I burn, and I've had a melanoma, and I am scrupulous about using mineral sunscreen or covering up (allergic to chemical sunscreen). So my problems with Vit D are "normal". But G and the kids all have brown skin that tans easy and they are out in the sun a lot. They shouldn't have trouble but they do.
Yeah for me personally I was taking large doses of D3 just to get it to 20. Then my doc told me that 50 or so would be ideal.
The K2 made it skyrocket to some crazy high number. The levels were done by using the LabCorp company who did the analyzing. That was my experience but like you said everybody's different. Honestly the experience scared me because I was concerned that I was D toxic. I haven't checked what the levels are lately since a few years ago.
 
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Cindy S.

Well-Known Member
Hello,

I'm in a wheelchair due to multiple sclerosis and have gained a large amount of weight over the years. I'm trying to avoid a gastric bypass and I'm interested in hearing about people's experiences with diets; especially people with a lot of health issues like myself. Any advice would be greatly appreciated. Thanks
I'm back on low carb and can feel the fat melting. I have a desk job and don't go to the gym. It's possible to lose weight without exercise, I'm proof.
If you have Netflix, watch the magic pill. It's not about a pill but changing your diet.
 

RobinB

Well-Known Member
Dr. Mercola has some good articles on increasing your D-3. I take a *lot* compared to most recommendations, but last year when I was tested my level was only at 75%. httmercolaps://www.mercola.com/article/vitamin-d-resources.htm
 
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